Monday, September 14, 2009

..."met her at a beauty salon...."

We took Miss Neve in last week to get her Onion Loaf cut. It is a crazy ol' mop of hair that is curling up more and more. We thought they were just baby curls at first...but now we are starting to think otherwise. This little lady is gonna be curly!!
Well we started out ok..and we snapped this picture..and then the screaming began..and didn't stop until we got close to home. Lordy. We have a drama queen on our hands!!

Sunday, September 13, 2009

FREE PARKING

Typical Sunday here for the Portnoys- We hit the PARK! It's a beautiful day! The kids let off a little steam....

....playing....



...and swinging...



...feeding the fish at the pond...



...licking germ infested plastic bubbles....



..and just being all around darling kiddos.

Tuesday, September 8, 2009

H1N1

Dr mercola spoke at the Autism One conference and also held a seminar on the Lyme-Autism connection--SO interesting...

Here is a new take on the H1N1...
http://http//articles.mercola.com/sites/articles/archive/2009/09/08/Another-Shocking-Warning-About-Swine-Flu-Vaccine.aspx

Monday, September 7, 2009

Looking for a Rocket ship....

So I think we have finally come to a decision to move forward with Hyperbarics. Aaron and I have been debating the pros and cons for years and wondering how the heck we can pull this off , both financially as well as logistically. Nate's DAN doctor is about 20+ minutes form our house and there is no way we can get there every day, especially not multiple times in a day.SO, here is what we are thinking. The HBOT (the rocket ship as I like to call it) costs appx 3000$/month to rent and about 20,000$ to buy. 20 grand is less than a car. If someone told me that if I buy Nate a Honda Civic he might improve dramatically health wise, would I not buy it? OF COURSE I WOULD!
So I think what it comes down to is that we rent it for a month...and here's the kicker: WE NEED TO BE WILLING TO THROW AWAY $3000. We know that Nate may not respond at ALL to this and that is a very real possibility. Fine. I will know that we gave it a try. BUT-WHAT IF, my baby, comes out and talks? what if he is more aware? what if it helps him potty train? what if, what if? what if? I can't sit around and worry about debt. We are in debt. Our child has extreme medical needs. I need to get over it. That is reality for us..so what's another 20K?
This week we will research it more and try to make plans. I have no idea how this will all work out, but my mind is fixed on it now...so look out. :)
The Portnoys are buying a Rocket ship!

Sunday, September 6, 2009

He's No Blockhead!

Nate has learned SO much through his ABA home program which is overseen through Nationwide Children's. Aaron's parents help us out every month (for which we are forever grateful)to be able to have our WONDERFUL ABA therapists come to the house to work with Nate. They are here 6 days a week, for a total of about 21 hours a week. This equals out to about 3 1/2 hours a day...which is in addition to the 12 hours a week of preschool, and the 3 hrs a week of OT, ST, and Little Gym. Learning is a full time job for our little guy.

Here is a video of Nate rockin' his block imitation program. It is so amazing for us to see him do so well with this considering he rarely looks like he is paying attention. His body is usually flailing about and he is babbling so it is hard to tell sometimes- but he DOES get it!! yay!

Wednesday, September 2, 2009

7 years and counting.....

Aaron and I celebrated our 7 year anniversary tonight.....wow. That seems like forever ago. We met over 10 years ago. I guess time really does fly by...

Tuesday, September 1, 2009

First Day of SCHOOL!

Today was T-Bone Malone's first day back to school. He is in his second year of preschool. The teachers are the same (all 3 of them), but the actual building has changed. I am not impressed, but it is what it is.

Here is Nate getting ready to go. He was super pissed at me for trying to take his picture.


Then we all piled in the car and headed to his new Elementary school.